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Open Access Highly Accessed Review

Realities of data sharing using the genome wars as case study - an historical perspective and commentary

Barbara R Jasny

Author Affiliations

Science/AAAS, Washington, DC, 20005, USA

EPJ Data Science 2013, 2:1  doi:10.1140/epjds13

Published: 12 February 2013

Abstract

The importance of data sharing has become a mantra within the science research community. However, sharing has not been as easy (or as readily adopted) as advocates have suggested. Questions of privacy, individual scientist’s rights to their research, and industry-academia divides have been significant hurdles. This article looks at the history of the debates and problems associated with data access that occurred during the ‘human genome wars’ and their aftermath as a way to explore some of the challenges facing diverse research communities.

Keywords:
data sharing; data access; human genome project